FSHD Global Research Foundation is proud of this App. Our Foundation is an Australian not-for-profit organisation established to fund medical research grants to find treatments and a cure for Facioscapulohumeral Dystrophy (FSHD), one of the most common forms of muscular dystrophy affecting both adults and children.
FSHD Global is a believer of transparency of all areas of charity, with research and accountability being integral aspects of its organisational culture and structure. We believe there should be an onus on charities to communicate clearly, transparently and consistently about how donations are being spent, which is why in 2014 we built the FSHD - Find the Cure app.
As you can see FSHD Global does not operate like your average not-for-profit.